Partner With PEP-Aus
We’re working together to transform communication and partnership in CF care.
PEP-Aus is built on a simple but powerful belief: that the best solutions come when everyone affected by a challenge has a seat at the table.
That means people with CF, their caregivers and families, clinicians, researchers, and community organisations — working side by side, from the very beginning and throughout the process of co-creating PEP-Aus with the Australian CF community. This is the first initiative of its kind in Australia, and a step toward a national standard of care where communication and partnership are central, not incidental.
[More about our current partners and funders →]
We’re actively looking for partners who share this vision and want to help shape the future of CF care in Australia.
Who are we looking for?
People with CF, caregivers and family members
Your lived experience is not just welcome here, it’s essential. PEP-Aus is co-produced with the CF community, and the perspectives of people who live with this condition every day are at the heart of everything we do.
CF healthcare professionals
Whether you’re a physician, nurse, physiotherapist, social worker, dietitian, or another member of a CF multidisciplinary team, your clinical experience and insight are invaluable to the adaptation and delivery of PEP-Aus.
Health, tertiary, and community organisations
If your organisation works in the cystic fibrosis space — whether in research, advocacy, service delivery, or community support — we’d love to explore how we can work together.
How we work together
The PEP-Aus initiative is guided by the Principles of Co-Production — a framework that puts collaboration, respect, and shared purpose at the centre of everything we do.
- Equality of Expertise — Lived experience, clinical practice, research, and system knowledge are all recognised as valid and contributions. No one perspective takes precedence.
- Shared Purpose — Every member of the PEP-Aus community works toward the same goal: better communication, stronger partnerships, and improved care for people with CF in Australia.
- Mutual Respect — All contributions are welcomed and considered with professionalism and openness.
- Transparency in Decision-Making — Roles, responsibilities, and how decisions are made are always made clear.
- Inclusivity and Accessibility — We actively work to ensure participation is supported through accessible processes, materials, and discussions.
- Reciprocity — Contributions are acknowledged appropriately, including formal recognition and remuneration where applicable.
Co-production in practice
Co-production is a collaborative approach, where there is equal partnership between clinicians, researchers, and individuals with lived experience of CF – from conception, to design, implementation and evaluation.
Engaging relevant stakeholders, identifying clear structures, defined roles, and shared expectations will support meaningful project outcomes. The PEP-Aus team are prioritising the co-production efforts to focus on the areas where diverse perspectives have the greatest impact for this project. Through shared clinical and lived experiences the PEP-Aus training will address needs that matter.
Not every decision benefits from a co-production lens – routine administrative and governance matters are handled efficiently by the core team, freeing up collaborative time for the work where every voice truly counts.
Getting this balance right is itself a learning process, and one we are committed to refining as PEP-Aus evolves. The insights we gain along the way – about what makes co-production work effectively in a CF context – will contribute to a growing body of evidence that can inform future CF research and co-produced health initiatives more broadly.
Get involved!
PEP-Aus draws on lived experience and multidisciplinary, cross-sector collaboration — because to truly empower those impacted by CF, we need to work together.
If you’re a person with CF, a caregiver or a family member, a CF healthcare professional, or if you represent an organisation working in the CF space, we’d love you to be part of this initiative. Please complete our Partner contact form and a member of the team will be in touch.